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12/25/2008 -- Yang Park
I had had recurring spontaneous pneumos at both lungs until 2005. Now I want to travel by plane. If another one occurrs in the plane, how serious it could be. Could it be all right until landing at the travel destination?
Post Reply -- Yang Park

12/10/2008 -- Marie
Hi,well my story is this, I have had 3 pneumothoraxs 1 required a chest tube, now what i am asking is this, i have 2 pneumothoraxs in 6 months, i have seen 3 surgeons, my lungs are covered in blebs, no one wants to do surgery on me, they keep saying i need to have at least 2 more chest tubes before they will do a VATS on me, in the meantime what do I do sit and worry when I will pop again? i am recovering from 10% pneumo thtis past november, and it still isnt resolved? how long do these take to resolve on their own? anyone got answers for ????
Post Reply -- Marie

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11/15/2008 -- Lena
Hey everyone, I am a bit concerned and I just wanted to ask a question and see if I could get some opinions. I had a spontaneous pneumothorax about 2 years ago. The first time I had a tube drain the air and the second time I was back after 2-3 weeks and that time I had surgery where they cut off the bleb and then stapled the end. Well for the past year I have been getting sharp chest pains and sometimes I get a shortness of breath, I have gotten x-rays and they are fine. Does anyone else still have problems so long after treatment? Is this something that I just have to get used to living with, or is there something I can do?
Post Reply -- Lena

12/29/2008 -- Pat
I had almost the exact same situation as you and I had some chest pains and shortness of breath/inability to take a very deep breath for about 5 months after my surgery. I am at about 1 year and 3 months past my surgery now, and have not really had any frequent chest pain, but sometimes i do get a pain in my chest that feels like a kind of internal soreness in the general area of where the scar from the removed bleb is on my lung.
Post Reply

11/30/2008 -- edliz
I understand your question, because I have been dealing with the same issues for many years. I have found that recurrances - after treatment - by chemical or surgery - typically last around 48 hours. I last had a doctored treatment 16 years ago and since then I have had numerous recurrances, but because of fear, I have not reported any of them to my doctor. I want to trust that the the chemical burn on the right side and the surgery on the left side has prevented my episopes from being more severe. Good luck and God bless.
Post Reply -- edliz

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10/22/2008 -- Gina
Hi, everyone. I have had two SP this year. After the second one I had VATS pleurodesis with Talc in May of this year. They removed a bleb. I was doing pretty good on recovery. I had some nerve pain and just general recovery pains until these past two weeks.

I went to the hospital and the Dr. and I have had x-rays and a CT Scan...they found nothing wrong. The doc said I must have just pulled some scar tissue.

Before my lung ever collapsed I was having little pains in it like I had congestion. Never did I think that it was a bleb.

Well, now my other lung is doing the same pains.

My questions are:

What is the proability of having blebs on the other lung? Is it common for that? Or are they just random things that happen? No doctor can seem to answer that for me.

Also, do you think the left lung is just feeling sympathy pains/nerve pains from the scar tissue being pulled?

I appreciate any answers!
Post Reply -- Gina

10/22/2008 -- Kari
I believe it is very common to have blebs on the other lung. I have the VATS done on my left lung back in March of 2007. I read my CT Scan report afterwards and it said I had blebs on my right lung. But the doctor never told me that. Less then a year later my right lung collapsed and I ended up having the VATS done on that one as well.
Post Reply -- Kari

10/14/2008 -- susan
My bofriend had surgery for a spontaneous pneumothorax two years ago. His lungs were attached to his chest wall(i don't know the official terminology for it). He was doing fine until a month ago when he has been having chest wall pain and some shortness of breath. He got a chest x-ray and a CT of his chest and was told he had COPD. He saw a Pulmonologist today and was told to just take an OTC anti-inflammitory. He is upset becasue he is tired of the pain, he cannot sleep at tight and is tired most of the time. I am worried it may be neuralgia from his surgery or something worse. Has anyone else had this pain and what has been done? Should he get an second opinion?
Post Reply -- susan

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10/09/2008 -- Pam
Four months ago my 17yr old son had a complete spontaneous pneumothorax and had a chest tube inserted to inflate the lung. He spent a wk in the hospital.He is otherwise very healthy.He plays a french horn in the band for 6yrs now. I want to know if it is safe for him to continue? He will be in college next fall and wants to play in the college band. His lung specialist said for him to live a normal life.But our family dr doesn't think he should continue playing his instrument.
Post Reply -- Pam

10/12/2008 -- Michael
I've had many pneumothoraxes in both lungs in the space of about six months(probably about ten in total) and finally had an operations to repair them. I play the saxophone and was recommended by two specialists to continue with this as playing wind instruments strengthen the lungs. I feel that continuing to play the saxophone defintely has improved my breathing and ability to do anytihng physical. I'd recommend listening to your specialist rather than a GP.Hope this helps you.
Post Reply -- Michael

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09/10/2008 -- abby
I am 44 yr old female, had a spont pneumo, then VATS Pleurodesis 7 weeks ago. I still feel pain and shortness of breath especially if I lift anything or go up and down stairs- any physical activity. I also get lung irriataion which makes me cough if i talk a lot. Drs think I should be back to normal by now. Is anyone else taking this long to recover? Beleive me, if i could i would gladly resume all normal activity.
Post Reply -- abby

11/01/2008 -- dimitris-greece
Hi, i had a S.P. and pleurodesis
two months ago , and i have still some of the symptoms you describe .I think that you should not be worried ,as long as the symptoms decrease ...I can see an improvement week by week.(i hope you understand my English)
Post Reply -- dimitris-greece

10/22/2008 -- Mackie
Hi Abby,

I had a pneumo back in July, then I had another on the same lung in September. As it turns out, I had my VATS the same day that you posted. I am wondering how you are feeling now?? I am 6 weeks out and still have a lot of pain -- really am not able to do much. It's frustrating and depressing. To make matters worse, I learned that I had a mechanical pleurodesis, not chemical (with talc). Apparently, the mechanical ones have a lower success rate. Do you know what kind you had? My surgeon also said I should be completely fine, but, from what I've learned from others, it does take time. Anyway, I hope you are feeling better....Please write back if you can. Oh, I also am a female and I'm 39 years old.


Post Reply -- Mackie

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08/25/2008 -- Patrick
Does anyone ever get pains that feel just like before you had a pneumothorax? From time to time I receive pains in my back/shoulder (if you would put your right hand on your left shoulder, closer to your neck, the pain is where my fingers are), along with sharp pains in my chest when taking deep breaths. I have had 2 pneumothoraces but 10 years ago. I will get this pain every once in a while, maybe once a year or less and tend to go away within a few days. Is this normal? Any reason to be concerned? I am mainly concerned now because I have a very important multiple day endurance sporting even this weekend... Also, perhaps completely unrelated I have a slightly raised temperature and a dull headache.
Post Reply

12/18/2008 -- Ari
Patrick: regarding your post on 8/25/08 anytime you have an ongoing fever for more than 24 hours you should make an appointment to see a doctor immediately. It sounds like you might have a lung infection (infections generally cause fevers).
Post Reply -- Ari

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08/24/2008 -- jeannette
Hi I am a 25 year old female (short 5'2'' 185lbs) who for the past 7-8 years now about 4-7 times a year will get vary bad pain on my left side of my chest feel as if I can't take a breath in if you were to lift up my shirt you can see my chest caved in. This only last for about 30 min and gose away. My husband and kids are the only one I have told this to and to tell the truth it scars me and my famliy alot. The last time I was home alone with my son age 4 who has CP and couldn't get to the phone and it lasted about 45min. I really thought I was going to die. My doc acts like she dosen't belive me because it dose resolve it self and she has not seen it. WHAT SHOULD I DO???????
Post Reply -- jeannette

12/18/2008 -- Ari
What should you do? Change your primary care physician. Go to the new one and describe what happened to you. Any doctor that does't take you at your word is not worth your time or your money (and it is your money, its just coming from the insurance company rather than your own bank account). Also, write a bad review of the doctor who didn't take you at your word on as many doc review sites as possible. I've had the same problem, and as a result, I've had 3 pneumothoracies that were completely misdiagnosed, which could have caused me to die as a result of the 3nd one where I had to travel by plane the day afterwards. Luckily, nothing happened and I was fine, but a pneumothorax is a definite contraindication for flying, as the change in pressure could make the air pocket grow, making it harder to breathe.
Post Reply -- Ari

10/22/2008 -- Gina
Definately find a new doc. I have found that doctors just don't know everything.

Also, when you have the next one - try to video tape it - or take pictures of the cave in. This way you have solid evidence of what is going on.

Good luck.
Post Reply -- Gina

08/25/2008 -- barnabusb
You should find a new doctor. And keep finding a new doctor until someone takes you seriously. It might not be pneumo-related, but pain is pain and it should be looked at.
Post Reply -- barnabusb

08/17/2008 -- Garrett
Has anyone who had a pneumo ever used a CPAP machine for sleep apnea? I had a spontaneous pneumothorax about 10 years ago and haven't really had any serious issues since, but I also have obstructive sleep apnea. I'm about to try a new mouth guard thing that might help, but I'd like to go with a breathing machine since it's pretty much guaranteed to work. I just don't want it to pop holes in my lungs. Thanks!
Post Reply -- Garrett

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08/04/2008 -- Mackie
Hello All,

Last week, while just sitting around, I had what I thought was a muscle spasm in my chest. It quickly became extremely painful and difficult to breathe. I thought I was having a heart attack, as all my symptoms were on the left side. The ER put me on oxygen and told me a surgeon would be in in the morning to do a chest tube. The surgeon disagreed and told me to go home and it should resolve on its own.
I am now seeing a pulmonologist who thinks I should have been admitted for more than one night and given the chest tube. She said it was over 30% of the lung. Anyway, after periodic x-rays the past few days, it appears to be improving, though I still have a lot of pain up the left side of my neck. Is this normal?? I was having problems with blood pressure dropping and near-fainting in the weeks prior to this, so we don't know what's related and what's not. She is testing for various causes before she labels it spontaneous. I am a female, 5'10" and 120 pounds. I am a smoker as well, though not for the past 5 days.
OK, sorry to ramble -- I'm just worried about this pain up my neck and in my arm. Thanks for any advice.

Be well,

Age 39
Post Reply -- Mackie

11/14/2008 -- Christy
Hi, I have had very similar symtoms as you. I have neck,chest, and back pain all after 2 spontaneuos collapes. Do you remember if you were on or near your menstral cycle when yours occurred? I believe I may have catamenial pneumothoraxes. Very rare but this may be whats going on with you. Look it up on the web if you havent already. alot of Docs dont even know about it. You can email me back if you want to.
Post Reply -- Christy

08/18/2008 -- Concerned

Dont lissten to anyone...I have had three of these...this is a very serious condition and it should not be taken lightly. You need to demmand having a pluradesis (not sure of the spelling) done on your lung. This is a surgury which will help stop the pnemothorax from reaccurring. I guarentee it will happen to you again and the next time will not be good. The same thing happened to me on the same side and my doctor sent me home and said dont worry it will work itself out...sure enough it did...about a year later it happened again and it was so sever I almost died...please be strong and make sure you take charge...remember it is your body not theirs...demand the surgury...it is a quick and simple procedure. Oh yeah one more thing STOP SMOKING OR YOU WILL DIE.


Post Reply -- Concerned

08/12/2008 -- bernice
hiya, i had a painin my left shoulder which i thought was a trapped nerve, 2 days later it got worse and it turned out to be my lung partially collaped, go to A&E for an x-ray, the doctors dont always get it right (speking from experience)
Post Reply -- bernice

08/05/2008 -- Char
Mackie... I just read your post. You really should have had a chest tube to remove all the air from your chest cavity so that your lung could expand to normal. The pain is because it takes a long time for the body to absorb the air that was released from the lung into the pleural space. I have had two collaped lungs in two years and just 4-weeks ago had the VATS surgery that will hopefully correct the problem. I hope things get better for you.
Post Reply -- Char

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07/15/2008 -- Rosie from Scandinavia
Hello!I write from Finland,hope you are able to understand my english. They diagnosted spontaneus pneumothorax on my 33 years old huspand on last saturday after 1,5 weeks of chestpains.My husband have astma, so symptoms were diagnosted as astma symptoms and not treated correctly from beginning. Sincedaturday he have been in a pleurodesis, and today they tried to take off the preurodesis, but lugn was not healed yet. I have to say that I am really worried and your experiences are highly appreciated. As he is now back to a pleurodesis for a couple more day, what is going to happen if this will not help ? What kind of operation is VAS (videa assisted surgery), what are the risks and how long it will take to cover from surgery ?
Looking forward to your comments !
Post Reply

07/18/2008 -- Henry
I have had VAS just about 5 weeks ago on my right lung and now I am back to work. I had the same thing done on my left lung which collapsed 6 years ago and it is definitely not that bad. I was getting sick of putting in a chest tube time after time and wanted to have a better solution to my spontaneous pnemothorax. I think healing time depends on the person but both times for me, I felt close to normal after 1-2 months out of the hospital and also feels better even after the first week.
Post Reply -- Henry

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07/13/2008 -- Francesco
I am 24 years old, less than 1 month ago I went through surgery on my left shoulder. It was an arthroscopy surgery with both general and topical anesthesia, The day after I felt pain in the chest and short of breath, after 6 days and rx they found it was a pnx of the left lug, 30% collapsed with a little puoring of pouring if pleuric liquid. they inserted chest tube and after 3 days form the rx it resulted healed, the lug was back to the chest wall. After several discussion and consult we reached the point where it can't be established with evidence if it was spontaneous or traumatic. Even though the correlation with the surgery is evident, it could have been the injection for the topical anesthetic ( it was on the left base of the neck)that would have pricked the upper part of the pleura, or it could have been some bubble previously existant that would have been broken due to the positive pressure of the auto-breather. I did also a CAT and no bubbles were found. I still have some bother and pain, particularly in the lower throat where I feel like swollen, or inflated, and I have pain around the sternum. i thought it was because of the intubation but it wasn't, I did ORL consult and nothing was found, a pneumologist gave me an aereosol therapy that I did with poor success and advised me to do a "high-resolution CAT" to deny the suspect of any micro-bubble. Studying about the matter, I found that my symptoms might belong to a "mediastinic enphisema", I don't know if it's the exact term in english, mediastino is the region between the lugs including heart, windpipe and oesophagus. Does anyone knows about that? Besides, I am striving with myself to accept that I will never go scuba diving anymore ( ironically if it had been traumatic due to diving I could have gone on!!!!)but I wonder if i could at least go snorkeling a bit, holding my breath for a couple of shallow dive, just to amuse, no spearfishing, no competition, no deep dive. What are the risks? what if I go through high resol. CAT and I have no bubble at all( meaning probably it was traumatic)??? thanks a lot
I appreciate everything and I feel a lot of empathy for anyone of you
Post Reply -- Francesco

12/18/2008 -- Ari
Sounds to me like they punctured your lung during surgery. If I were you I would consult a lawyer. doctors need to be more careful, and the bad ones will be fired from the hospitals where they work as surgeons if the hospitals are sued. I think it is not only beneficial for you to consult a lawyer, if it ultimately results in a verdict against the doctor or hospital, it will be good for medical practice as a whole and will help (if even in a small way) make surgery less risky.
Post Reply -- Ari

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07/12/2008 -- meg
I was wondering if pneumothoraxes need to cause pain, I am having trouble breathing on one side but my mom said they cause pain, is it possible to have one with no pain?
Post Reply

12/18/2008 -- Ari
Yes, it is possible for a pneumo not to cause pain. But how would you know that you are only having trouble breathing on one side??? Having ACTUALLY suffered a pneumothorax on one side, I'll be honest and say that seems kind of impossible to know (that only one side isn't breathing right). The only thing that has ever indicated to me that I had a penumothorax was pain AND trouble breathing, but I was never able to honestly say that the trouble with breathing felt like it was occuring on one side only (even though it was -- only one lung collapsed). Sounds to me like the problem is probably in your mind. It is certainly not serious unless your lips and/or fingers are turning blue.
Post Reply -- Ari

10/07/2008 -- Deanna
Yes it is possible to have pneumo without much pain. My son has had 5 and had plueradesis and now it is back on the other side after 9 months. He has a bubbling sensation but very little to no pain
Post Reply -- Deanna

08/05/2008 -- Char
Meg... just read your post. A pneumothorax doesn't necessarily have to hurt, but it does at minimum cause shortness of breath. If the collapse of the lung is minimal, say 10%, the pain is minimal, but it feels difficult to breathe. This just happened to me on my second collapse 4 weeks ago. I had the VATS surgery to remove "blebs" and create scar tissue on the lung so that it adheres to the pleural wall. I hope it works! Good luck... I'd get a chest xray just to be sure!
Post Reply -- Char

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07/11/2008 -- Janice
On 6/14/08 I started having severe pain in my back, chest and neck on the left side. I was sure I was having a heart attack but test results said that it was a pheumothorax. I spent a few days in the hospital with x-rays, cat scans,bronc and even pet scan. The doctor says that I have infection that caused the problem. Didn't have to have chest tubes, etc. Have to go back in 2 months and he says that if it is not better we might have to do some surgery. For a few days after the pneumothorax, I did not have pain but the last 2 days I have. Can anyone tell me about the surgery and what you are really to expect? I would appreciate any info.
Post Reply -- Janice

08/05/2008 -- Char
I just read your post. If you are having pain, I wouldn't mess around... I'd seek help soon. I had the VATS surgery 4 weeks ago today to remove "blebs" or blisters from my lung which were causing it to collapse... two collapses in two years. During surgery, they also created scar tissue on the lung so that it would adhere to the pleural lining and hopefully never collapse again. The made 3 incisions on my side and in one hole they used a mini-camera to see what they were doing and the other two holes were for the instruments. Must less invasive that way. I still struggle with pain from the surgery, but am getting better with each passing day. They will tell you that you should be feeling fairly normal after one week, but be cautious of that... it's been 4-weeks for me and I'm still not ready to return to work... hopefully by next Wednesday. Good luck... and know that there are forums online like this one as a support for you if you have the surgery.
Post Reply -- Char

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07/07/2008 -- Gregory
I had 3 PTX on the right side, all of them was 100% of collapse. The last one happened 1 month ago and I have had a VATS surgery now. Since then I am quite fine but still have some strange feelings on the right side ( I had 3 tubes inserted). . Do you know how long it is recommended not to do any sport after the surgery? Thanks in advance for your answer. Greg (31) from Hungary
Post Reply -- Gregory

08/05/2008 -- Nick Choi Yuen Ho
Hi!I am Nick from Hong Kong. I had undergone VATS before as well. It is recommended that patients should not be engaged in vigorous sports and heavy duty for at least 3 months-6 months. Wish you a speedy recovery~!
Post Reply -- Nick Choi Yuen Ho

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06/25/2008 -- Victor

My story in short:

21 year old male ( thin, athletic, non-smoker). 1.5 years ago spontaneous pnuemo, it wasn't very big (about 40%). I had a needle aspiration, but it didn't help. So I had VATS. After op Dr. said me that they had cut 3 blebs on the upper lobe of right lung, coagulated bronchopleural fistula on the lower lobe of right lung (that was the reason of SP) and done pleurodesis. After 7 days I was discharged from hospital.

After 1.5 years of active life (backpacking in mountains, climbing) SP has returned (but it has happened in quiet condition) on the same side. Got an x-ray my lung was 10% collapsed. Next day it was 15% collapsed. I feel only slight pain when exercising and when do bend waist test.

Dr. said that it will probably resolve after 2 weeks. But he suggested me open thoracotomy to forget about SP at all (and said that it is imposible to do second VATS). But I'm afraid of consequences of open thoracotomy because I heard that some people feel pain even after 10 years and they have to use painkillers.

Is it true that thoracotomy only one way to forget about SP? And does it realy have so terrible consequences.

I don't what to do, any suggestions?

Post Reply -- Victor

09/30/2008 -- miroslav
hi,i hope you understand my english.i am pneumo patient,i had one 1 year ago.sense then i dont have big problems,but sometime i got shortnes of breath and my blod presure is litle higher than normaly.i checked my lungs,and doctor said that everithing is normal,but i don't fiel that i am ok.does anibady have same problems.please ansver me on kosovka@att.net .thank you
Post Reply -- miroslav

08/05/2008 -- Nick Choi Yuen Ho
Hi! I am Nick from Hong Kong. I had undergone VATS as well and I had recurrent pneumothorax afterwards. To address your concern, Open Thoracotomy has a cure rate of about 99% while the rate varies in different situation. It is the last resort in spontaneous pneumothorax because it is an Ultra-major surgery and may lead to more blood loss. Wish you a speedy recovery, because I am facing the same situation here. Keep in touch~
Post Reply -- Nick Choi Yuen Ho

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06/20/2008 -- One
i already done my spontaneous pneumothorax treatment.i been on hospital in 2month for this treatment. i done VAT's operation and the doc remove my lung about 6x4x4cm at upper right my lung.

now im ready for work after 2 1/2month mc. normally before had pneumothorax, i always riding my motorcycle to go to work. i always riding about 1hour to get to my office.

but now, after pneumothorax treatment, can i riding my motorcycle again?? will my pneumothorax come back if i riding motorcycle everyday???
Post Reply -- One

12/18/2008 -- Ari
If I were you I would try not to ride the motorcycle. My reason is that on a motorcycle you are more xposed to lung irritants (dust from the road, exhaust from other cars, trucks, buses, etc. Furthermore, on a motorcycle you are at a greater risk for major chest trauma, which could open up any remaining (or new) blebs that can form in your lung(s).

Post Reply -- Ari

06/14/2008 -- Michael Boyett
I had a SP on the right side back in late '06 and had a tube thoracostomy performed on me. Does anyone know if there is a possibility of a hernia being a complication of thoracostomy? I think I have a hernia on my right side......
Post Reply -- Michael Boyett

06/14/2008 -- Matthew
This has been my third pneumothorax in the past two months. My life keeps falling off track because of this. I'm so stressed out and all I want is a relaxing smoke to ease my nerves. I still have the Heimlich Chest Drain Valve inserted into me. I was wondering if this would be a safe idea? What is the harm in doing so? I would really appreciate your response.
Post Reply -- Matthew

06/11/2008 -- Barbara
A professional scuba diver suffered from a traumatic pneumothorax, during a surgical intervention to remove a kidney affected by cancer.
Can this person practice diving again?
How much time should he wait to go back to this activity?

Post Reply -- Barbara

06/09/2008 -- bluegreen
Just over a year ago, I had a pleurodesis done after my second spontaneous pneumothorax. My lung continued to collapse every time the vacuum was turned off on the chest tube.

At my follow-up appointments, there was a small bubble where the pleurodesis didn't seal the lung to the chest cavity. I could feel the bubble and a 'rattle' that would sometimes become quite painful.

The 'rattle' eventually stopped, but I still get sharp pains in the same place.

Can anyone tell me if I can expect this pain to continue for the rest of my life? Are there any effective pain management strategies for something like this?
Post Reply -- bluegreen

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05/01/2008 -- Sonya
Can anyone please tell me that how long does it suppose to take for my breathing to come back to absolute normal after a Traumatic pneumothorax. Does it ever come back to normal
ever? I am really scared to be like this for the rest of my life.
Post Reply -- Sonya

10/26/2008 -- Rican
You are ok the problem is in your head sometime you make anxiety that you think you has problem breathing but is your head 1- buy a lung exerciser skiing more oxygen 2- make exercise that good to expanded your lung 3-eat tomatoes and apples is good for your lungs Scientists have found that if you want to have healthy lungs you should eat apples and tomatoes is real..good luck!!!

Post Reply -- Rican

06/02/2008 -- Karim
I had a 100% tension pneumothorax and my breathing did return to normal within weeks of the surgery. However, I am sure each persons recovery time depends on the treatment and severity of the incident. In my case, I saw a measurable improvement in my level of pain and breathing each week.
Post Reply -- Karim

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04/30/2008 -- Witono

I had this problem since 2004. Despite having this problem, for the love of sports I am still active in all kinds of endurance sports that the doctors recommended not to have. However I still suffers from small occurance which the pain dies off between 15min to up to few hours.

Instead of learning to live with spontaneous pneumothorax, I really want find a long term solution to end this once and for all. I had just (15min ago) consulted a doctor who mentioned a possible solution to chemically 'glue' the lung. How much risk is involved? Instead of avoiding over exertion on lung, is there any possibity to fix pneumothorax with 'physical training' that expand lung capacity and thus reduce risk of collapsing?

Is there any other active sportsment with spontaneous pneumothorax, who may like to share their experience on you live with spontaneous pneumothorax?

Thank you!

Your Sincerely
Post Reply -- Witono

08/10/2008 -- simon
hello mate i had my lung glued to my ribcage to stop air getting round my lung and crushing it ive had 2 pneumohorax and the last time they disided to operate this was last october. and for the past few weeks ive been getting a sharp pain on my left side where i had op and it nearly takes breath away so im going to see doctor hope this helps
Post Reply -- simon

04/18/2008 -- Vic
Hello, for anyone that is feeling chest pain or a stabbing sensation around their collar bone... knock on your chest with your fingers, it is what my doctor did to me in the hospital... and it takes away the pain with every deep breathe...
Post Reply -- Vic

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04/14/2008 -- Sonya
Hello all, I am 25 years old female, had a traumatic pneumotorax in Nov,2007. I am still having problem with my breathing as i have to a deep breath pretty often. Please anyone who had experienced the same thing as me respond. I just want to know if its normal to have that until now as its been five months. I am really upset about this and started to feel like i'll never feel normal. Please anyone respond. I have asked the doctors but they said i should feel absolutely normal by now. Noone is helping me with this.
Post Reply -- Sonya

04/16/2008 -- zeone
my husband had this same thing happen approx 2 months ago. He was a smoker prior...with him as well they told him "normal life...BUT NO SMOKING"...that if he were to smoke it would greatly increase the risk of it happening again.....Good luck...
Post Reply -- zeone

04/15/2008 -- Kari
I have not had the exact same experience as you.. but my left lung has collapsed twice and my right once and I have had surgery on both... most recent being in Feb 2008. I have to take quick but deep breaths everyonce in awhile.. from what I hear it is normal and may eventually go away. Everyones body is different and healing times vary for everyone. Hang in there... I know it is fustrating and scary all at the same time. I also know that our doctors really don't have patience or compasion most of the time.
Post Reply -- Kari

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04/01/2008 -- Paul D
Hi All, I suffered a spontaneous pneumothorax on my right-hand side in January 1995 (I was 20 years old then). I underwent keyhole surgery and have been fine thankfully ever since. The surgeon told me afterwards that I must not EVER use compressed breathing apparatus (i.e. SCUBA) or go below 2 meters deep in water as either could cause another recurrence. My reason for posting this is because I wish to undertake offshore training for working on oil rigs. There is no requirement to use the scuba gear but I will be strapped into a mock helicopter for a period of time which will be rotated in a swimming pool and I will have to make my way out. I have asked several people who have completed this training what is involved and I have been told that you will be no more than one meter deep in the water while in the simulator. Has anyone out there completed this course after a similar lung operation or know of someone who has? Is is advisable for me to do this? Another pneumothorax is the last thing I need!!! Thanks in advance.
Post Reply -- Paul D

05/05/2008 -- Justin
I was interested in your comment about no scuba diving. I too have had spontaneous PNX on both lungs, with surgery to glue them back together. Doc told me absolutely no scuba diving below 2 meters, but didn't say anything about high altitude. Do you recall hearing anything about this? I am traveling overseas and will be doing some pretty high altitude hiking and can't reach doc to ask. Thanks and good luck to you.
Post Reply -- Justin

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03/26/2008 -- Chris
Its been 2 months since my first collapse on my right lung. i was just wondering if singing is a no no? i am a singer and have not performed ever since.
Post Reply -- Chris

05/01/2008 -- Carol
My son had a spontaneous pneumo when he was 17. It was about 30%. He is an avid singer and sings with two groups as a bass in college. He's never had another collapse. He's singing now and I'm waiting for him in the music library at JMU.
Post Reply -- Carol

03/28/2008 -- Vic
It's been a month and a half since my first collapse in my right lung, I have been back to singing for the past month... I've read that it is not good to sing if you have a pneumothorax... but if you don't have any more symptoms... (spontaneous coughing, tension from breathing, etc.) then you don't have a pneumothorax...
My doc told me to live my life, and don't live it in fear of always getting a pneumorhorax again...
Post Reply -- Vic

03/12/2008 -- Kuza
I have had a second spontaneous pneumothorax and it needed surgery of pneumothorax. My question is what chance are of another sp.pneumothorax after a surgery?! Is a sergury permanently solution?!
Thanks in advance .
Post Reply -- Kuza

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02/14/2008 -- Gene
I'm 19 years old and I had my first SP a year and a half ago. Leading up to it I was a cross country/track runner. In my case I had a 50% collapse and since my lung didn't inflate my doctor performed the talc procedure. My doctor told me I was completely fine to live a normal life as if nothing happened. I started weightlifting/bodybuilding and I am in the best shape of my life. I lift extremely heavy weight too. The problem is I still smoke once and a while (didn't smoke before SP). I know everyone is going to think I'm crazy, because I am. But I kind of disregard my condition anymore. The problem is though that I still get some pain in my left lung that had the SP and talc procedure. Any comments? Did anyone else notice smoking irritates it?
Post Reply -- Gene

04/16/2008 -- Ari

In my experience, smoking has DEFINITELY been the direct cause for spontaneous pleural effusion (or pneumothorax that resolves itself). If I were you I would quite smoking immediately. Some people (like you and me) though we may be strong in other ways, just have sensitive lungs. You should be sensible in order to avoid damaging your lung further with multiple pneumothoraxes (sp?). Seriously, if you've had more than one, it becomes a problem -- its like opening scarred tissue again and again - it doesn't heal as well after the first time since the tissue around the injury (scar tissue) is less supple.
Post Reply -- Ari

03/26/2008 -- Justin
I looked into the talc powder procedure after getting 2 spontaneous pneumothorax within 4 weeks of each other. I found some info on the net about talc powder, you'll see why I didn't get it and most doctors avoid it. I think its best if you see for yourself, sorry man.
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02/10/2008 -- Robin
Last December my son had a SP and chest tube inserted. Right after that i noticed that his left eye was droppy and his pupils were unequal. It has not reversed back and i am told it was caused by wrong placement of chest tube, and that it might of hit the optical nerve. Is this a common side affect and can something be doen to fix it??? Please point me in the right direction. Thanks
Post Reply -- Robin

04/16/2008 -- ari
An optical nerve in the chest??? Thats a laugh. I'd say that's a malpractice suit in the making... And my dad's a doctor!!! The careless and incompetent doctors need to be weeded out! Talk to a good medical malpractice attorney - preferably not one who defends doctors, but one who works exclusively for injured patients and their families.
Post Reply -- ari

04/14/2008 -- mary
hi robin ive had same problem a damaged nerve not that they will admit to it but i was fine b4 surgery like to know how u got on?
Post Reply -- mary

02/02/2008 -- Chris
I just wanna know what happens after the chest tube is removed [mine was removed a day later]?? thanks.
Post Reply -- Chris

01/24/2008 -- Tara
Hi, I am 25 years old and have been diagnosed with Catamenial Pneumothorax, which is a condition that my lung has collapsed when I have my period. It has collapsed 3xs in the last four months. I have had four chest tubes, two VATS procedures and a pluerectomy (where the remove the pleural lining). I am currently on Lupron (which makes me go threw menopause. I am wondering if any one else has this condition. It has really effected my life. If anyone would like to talk to me my email address is tara5605@yahoo.com Thank you
Post Reply -- Tara

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01/21/2008 -- Debbie
I am wondering if anyone else has incurred the same problems I have. I am a healthy 27 y old and had a spontaneous pneumothorax back in October, I have had 4 chest tubes and the surgery to correct itself and my lung is still collapsing, this will be the 5th time in a row. If anyone has any info about this same problem it would be very useful, I'm at my wits end!
Post Reply -- Debbie

04/16/2008 -- Ari
Debbie, see Tara's post right above yours... Catamenial Pneumothorax perhaps? Is it happening with your menstrual cycle? Thats a lot of pneumothoracies (sp?). By now your doctor should have decided to attach your pleura to the chest wall.

Also, are you being careful to avoid activities that can exacerbate the problem? Do you hold your breath a lot? Do you strain a lot? Cough a lot? Do you smoke? Do you drink enough water? Get enough sleep? Eat well, take your vitamins? I'm not kidding -- you need to be healthy overall. Some people (like you and me) just have weak lungs (though you may be strong in other ways).

Good luck!
Post Reply -- Ari

01/16/2008 -- mike
i had a surgery for a spontaneous pneumothorax 7 years ago and recently i had an attack that felt like it collapsed again. after a couple minutes the pain went away. prior to this, i have experienced an occasional poking pain, but now they seem to be more frequent. these episodes never last long enough for me to get my lung looked at by a doctor, so i dont know if they would be able to do anything once things go back to normal. does anyone have any advice
Post Reply -- mike

01/08/2008 -- Steve Mustoe
Hi people. Last Aug (07) I was admitted to my local hospital with severe chest pains and suspected heart attack. After 11 days, several x-rays, numerous blood tests and a bronchoscopy, it turns out that I had a viral infection which has permanantly damged my diaphragm and in turn caused my right lung to partially collapse. My specialist has told me that as the damage is for life, there is nothing which can be done to re-inflate the lung. As a result, I've lost about 30% of the ling capacity. As you will be aware, it's damn painful and very restrictive. I find that I can only walk very short distances, on the level, and that slopes and stairs make life very uncomfortable in general. Anybody know of some breathing exercises or physical exercise that helps? The specialist has basically told me that walking is about the limit. Nothing strenuous and no swimming, sort of limits me - eh? Just to add to the problems, I am shortly due to undergo surgery to remove a benign (?) brain tumour. The surgeons are aware of the lung problem. The guy has a sense of humour, I hope, 'cos he told me it's fine. It's not HIS problem, all down to the aenethestatist !!!!
Post Reply -- Steve Mustoe

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01/03/2008 -- Pablo
I had a spontaneous pneumothorax on my left lung at age 13. I was hospitalized for about a week while treatted with chest tube insertion. I had no serious problems since then (I am now 35 years old) although every once in a while I get some pain around the lungs radianting to my teeth, very similar to my pnemothorax experience.
I believe these to be some kind of "small pneumothoraces" but can't be sure. The pain is not too strong and lasts about an hour or two, coming and going over a period of two or three days. I can usually calm it somewhat by changing position. This happens to me about three times every year since my pneumothorax. The only difference as compared to my pneumothorax experience is that it doesn't hurt when I breath. It seems to occur after air travel or when going from a dry into a humid climate, or entering a damp room. Could this be a serious problem?
Is there anyone has a similar experience?
Post Reply -- Pablo

04/16/2008 -- Ari
Hi Pablo... I had a somewhat similar experience -- it happens when I slide back into the habit of smoking... I don't have to smoke very heavily, but the lung pain, which comes on as a sudden attack, is very painful (at first very scary -- it induces a state of genuine fear despite the fact that I know, or think that it is just a pleural inflammation) and leads to a day or two of severe pain, and a week or two of slight discomfort. I don't know if I ever had a proper pneumothorax -- if I did it resolved itself, but I do have these "lung attacks". Obviously I've taken pains not to slide back into the habit of smoking... I'm scared to smoke a whole cigarrette on my own. Recently, when I was in Shanghai, it was IMPOSSIBLE to avoid smoke-filled bars, and I started to feel the lung sensitivity, but it never quite became a proper attack (THANK GOD).
Post Reply -- Ari

01/03/2008 -- Matt
My experience with Lung Surgery.

I suffered a full spontaneous pneumothorax (aka my lung collapsed to nothingness like a wet sock) in the middle of an executive meeting at age 27. Granted, trying to be a man I did my best to fight it until finally the President of the company was like, "hey Matt
, man, you about to die or what?" and then when I couldn't really respond because it felt like I had a knife in my back, I couldn't catch my breath, and my head was on the board room table, well they called the paramedics.

So long story short, I was perfectly fit, healthy diet and all that jazz, and my lung collapsed twice within 2 weeks, after the first week in the hospital they said it was good to go and they let me go and a week later, boom, out for the count again and in the hospital for another week. So I went ahead with the surgery......... and all I can say is ask for advice before you do it if you are wondering. Here is my experience...

I got my Surgery from the Washington DC Thoracic Surgeon of like a lifetime achievement award or whatever, so the guy was supposed to be the best. Well the Talc thing in my opinion is just a preventative measure so your lung doesn't collapse. Those damn blebs still rip open now and then 5 years later and there is the whole knife in the back feeling all over again- just without the collapse though. The GOOD, the lung doesn't collapse because it is 'glued' to your lung cavity. The BAD, the ridiculous pain (which varies from person to person) of having a bleb rip or a minor pneumo is all too real still. In the end, I would personally suggest the surgery because without it each time one of those problems hit, I would have needed a chest tube, so there are 5-6 week-long visits to the hospital I avoided. BUT, I would really, really ask if there is some other procedure that might be more effective before you go under the knife like I did. I can't imagine that this is the best thing out there still.

Hope that helps someone out there.

Post Reply -- Matt

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